Each year in June there are almost 9 million Americans who feel seen for their often-hidden illness. According to the American Association of Neurological Surgeons (AANS) (www.aans.org/patients/conditions-treatments/scoliosis/), this month represents awareness for approximately 2-3% of the population that have a spinal curvature. While many are familiar with the basic definition, there are several lesser-known aspects of scoliosis that this month can raise a voice too. Here’s a deeper dive into the condition, a chance for promoting early detection and fostering a better understanding of its impact.
What some people may not know is that scoliosis is a disease that is traditionally not caused by lifestyle or poor posture choices. According to AANS, the most common type, idiopathic scoliosis, has no known cause and is believed to be a result of genetic and environmental factors. When it comes to genetics, studies show there is a 30% chance of developing scoliosis if a close relative has the condition, however sometimes there is no correlation to other family members.
There is importance for early detection in scoliosis which is often overlooked. Early diagnosis is key to effective management and in some cases can prevent the need for surgery. However, less than half of U.S. states mandate scoliosis screenings in schools, which means many cases go undiagnosed until the condition progresses. This underscores the need for increased awareness among parents and healthcare providers to recognize the subtle signs of scoliosis and to screen for signs such as changes in posture that doesn’t go away, a shoulder that may seem permanently slumped, and other postural or body issues.
There are often misunderstandings about scoliosis that can pose challenges for some with its presence. For those with the disease they can face uneducated feedback such as suggestions on just altering their posture or trying new ways of stretching when their spine is indeed not going to remedy with a few stretches or sitting up taller. Most scoliosis is not preventable through conscious efforts to improve posture or even a commitment to physical fitness or stretching.
The treatment landscape for scoliosis is always evolving. While bracing and surgery remain standard options, advancements in physical therapy and exercise-based approaches are gaining recognition. The use of physical therapy and exercise-based approaches aren’t used to cure scoliosis but to help patients with their pain management, body mechanics and range of motion. Non-surgical interventions offer alternative approaches for managing scoliosis and potentially preventing the need for more invasive procedures. Those who remain active tend to lead fuller lives and have a better sense of well-being.
Wellbeing and the emotional and psychological impact of scoliosis is important to recognize. Those with scoliosis may experience self-esteem issues and body image concerns due to the visible body differences from their peers. Depending on severity, needing to wear a brace and other complications, scoliosis can feel isolating and impact mental health. People with scoliosis often report living in chronic pain which can impact daily life, relationships and lifestyles, making emotional support and care a priority. Support groups, peer groups and even Facebook groups online now offer many ways for people to connect, support and find people with commonalities they may not find in their regular circles. These play a vital role in providing emotional support and empowering individuals to cope with the challenges of living with scoliosis.
You might now say, Scoliosis Awareness Month is more than just time for raising awareness; it’s a call to action. It’s a reminder to prioritize early detection, support ongoing research for a disease that like many others has no cure, and advocate for comprehensive care that addresses the physical, emotional, and psychological aspects of this complex condition. Months like this are so important to so many who live with ongoing complications and impacts that make them unique, and it gives them a chance to speak out and share or say, “that’s me!” Like many diseases, we may not realize how much they matter until they impact us or someone we love. This month it’s for those who at their core have so much to share. Scoliosis Awareness Month: Unveiling Hidden Truths